CFLC

On April 15-17, 2010, approximately 200 physicians, allied healthcare professionals, exhibitors, and family members came together at the first annual CFLC Continuum of Care Conference to share information and education on CF. Over the course of the 2.5-day conference, attendees had the opportunity to learn about…

Healthcare Track Sessions

State of the Art Newborn Screening. Best practices for CF newborn screening and diagnosis, covering care of the asymptomatic CF patient and the challenge of managing CF-related metabolic syndromes.

Resistant Bacteria and Infection Control. What are the risks? What are the successful strategies? Acceptable and effective measures to protect the health of CF patients.

Pulmonary Exacerbations. How is a pulmonary exacerbation defined? How effective are our current treatment methods? How can we improve these treatment strategies?

Importance of Adult Care/Transitioning to Adult Care. With 47% of CF patients now of adult age, by 2012, more than half all CF patients will be adults (ie, grown up children!). Practical advice for transitioning to adult care and enjoying its benefits.

Nutrition and GI Issues. The latest information on gastroesophageal reflux and CF, DIOS Working Group, behavioral nutritional interventions, and guidelines for infants.

CF Complications. How does CF-related diabetes develop and progress? Are patient outcomes really better if we screen and treat more intensively? How can we detect and treat CF bone disease? Can we eliminate CF bone disease with good screening and treatment methods?

CF Clinical Research. How do the new CF disease-modifying therapies work? Do the latest clinical trial data demonstrate real effectiveness? What can we expect to see in the next year?

Family Track Sessions

What Did They Say? Practical tips for understanding and dealing with a CF diagnosis.

CF Complications. What is CF-related diabetes? Why is it important? Why is bone health a problem as patients with CF age? What is the latest data on vitamin D in CF?

Avoiding Germs and Stamping on Pseudomonas. How do germs spread and what can be done to stop them?

How YOU Can Make a Difference. How you can work with your CF center to make the lives of CF patients better.

Squeezing Airway Clearance into a Busy Day. Practical tips to merge effective CF treatments into a full  and active lifestyle.

CF Rights – At School, At Work, and Insurance. What our society assures you, as a CF parent/advocate, and how to effectively get a fair deal. 

Managing CF Across the Lifespan. Important CF Foundation Guidelines for care of infants, chronic medications, nutrition, and adult care—managing CF from a CF patient’s and family’s viewpoint.